About us

The American Parkinson Disease Association (APDA) was founded in 1961 to "ease the burden and find a cure" for Parkinson's Disease.  Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease.

The Utah Chapter applies those APDA principles to the local population here in the inter-mountain west.  The chapter helps run support groups in the state, holds educational seminars, and has fund-raising events.

 

Information and Referral Center

The Information and Referral Center is a program made possible by the APDA and the Department of Neurology at the University of Utah.  It is designed to be a resource for individuals with Parkinson's Disease in the State of Utah and the surrounding areas including portions of Colorado and Wyoming.

The IRC is a resource center designed to educate, counsel and refer patients to medical professionals, as well as to increase public awareness about Parkinson's Disease.

The main focus is to assist anyone with special needs related to Parkinson's Disease and to help maintain a quality of life that is fulfilling for patients, their families and friends. 

 

Resources available through the IRC include:

• Support groups
• Library of patient education resources
• Deep brain stimulation (DBS) information
• Physician recommendations
• Regular newsletters
• Educational booklets and supplements
• Educational symposia and seminars
• Information on local Parkinsonism programs

 

 

Contact Information:

APDA Information & Referral Center
University of Utah Medical Center
Department of Neurology
729 Arapeen Drive
Salt Lake City, UT  84108


Tel:  1-801-585-2354       Fax: 1-801-581-4192

 

 

Utah Chapter Board

President
Guy Madison
1-801-652-0011
gmadison7@comcast.net

Vice-President
Reuben Jessop, Ph.D.
1-801-226-5874
reubenjessop@ernesthealth.com

Treasurer
Tom Mraz
1-801-942-0509
mraz.tom@gmail.com

Secretary
Emily Ure
1-801-389-0494
Emily.Ure@medtronic.com

Board member
Sudhir Sahasrabudhe, Ph.D.
sudhir@prolexys.com
Board member,
Brenda Ralls, Ph.D.
BRalls@Utah.gov
Board member
Lamar Sayer
lemon1948@gmail.com
 
Board member,
Joan Sayer
frisch24@gmail.com
 
Board member
Jan Pierce
Jan.Pierce@hsc.utah.edu
Board member
Gary Santy
SantyGus@Yahoo.com

Board member
Ray Christoffersen
Christoffersencr@yahoo.com

Webmaster
Grahame Leach, Ph.D.
apda@polynumeral.com
   
How to help

The Utah Chapter of the American Parkinson Disease Association is run entirely by volunteers.  It is a non-profit organization.  We are largely funded by contributions from the private sector.  To be able to provide and develop programs that benefit individuals with Parkinson's Disease and their families, we need gifts of support.  Our fundraising events, patron contributions, program fees and in-kind donations have contributed to our funding base over the years.

We ask that you consider making a gift that will clearly impact the quality of life of individuals with Parkinson's Disease and their families.  All donations are tax deductible and can be given in the form of cash, stock or in-kind contributions.  Please help us in our efforts.  Your support is a critical factor in the success of our work to help others.

To make a donation contact the Chapter President or Treasurer.  To make a donation on-line with a credit card, click here.